100 Sites and Support Resources for Hospice Workers and Nurses

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If you’re a nurse or worker in a hospice, you know that your profession comes with special needs (not just a lifetime supply of Cherokee Workwear Scrubs) and emotions. There are a number of websites out there that recognize this need, and offer help and support to those who need it. Read on, and you’ll find 100 sites and resources that can help you get the support that you need.

Resource Sources

Use these websites as a jumping off point to finding resources.

  1. Hospicenet: Visit Hospicenet to get useful resources that will help you and your patients face life threatening illnesses.
  2. Family Care Navigator: Through the Family Care Navigator, you can find support programs and resources throughout the US.
  3. About Palliative Care: About’s section on palliative care offers lots of advice and resources.
  4. Hospice Resources: Find jobs, information, and vendors for hospice workers through this site.
  5. The Caregiver Resource Center: Follow this step by step guide to the aging process and you’ll find lots of resources and information for caregiving.
  6. Suite 101: Caregiver Support: Check out Suite 101 to find resources and support for caregiving.

Organizations

In these organizations, you can find lots of support and information for specific illnesses, hospice patients, and much more.

  1. American Cancer Society: Those who work with cancer patients will find a world of helpful resources on this American Cancer Society’s site.
  2. American Association for Geriatric Psychiatry: In this national association, you’ll find support for the field of geriatric psychiatry.
  3. National Council for Community Behavioral Healthcare: The organizations in this council provide treatment and rehabilitation for mentall illnesses and other disorders.
  4. Family Caregiving Alliance: Help families who provide caregiving find resources through this alliance.
  5. National Funeral Directors Association: The NFDA offers useful resources and information for funeral directors and those involved in funerals.
  6. Americans for Better Care of the Dying: This organization works to ensure that every American can have good care at the end of their lives.
  7. Hospice Foundation of America: The Hospice Foundation supports those who work in hospices.
  8. National Organization for Empowering Caregivers: The NOFEC provides education and support to caregivers.
  9. National Association of Professional Geriatric Care Managers: Find support for elder care through this association.
  10. Elderberry Institute: The Elderberry Institute supports local living caregivers.
  11. Alzheimer’s Foundation of America: Through this group, you can find services and resources for patients with Alzheimer’s.
  12. American Society on Aging: Read this society’s publications, join conferences, and enjoy seminars through this website.
  13. Association of Pediatric Oncology Nurses: This association supports nurses that work in pediatric oncology.
  14. National Family Caregivers Association: Caregivers can find resources, organizations, and more through this association.
  15. American Nurses Association: Join this association to be a part of the largest professional organization for registered nurses in the US.
  16. American Hospice Foundation: The American Hospice Foundation supports the needs of the terminally ill and those who grieve them.
  17. Bereaved Parents of the USA: Find help in this support group for bereaved parents and family members.
  18. Hospice Patients Alliance: This consumer advocacy group supports serving hospice patients properly.
  19. Alliance for Quality Nursing Home Care: This alliance cares for more than 300,000 elderly and disabled patients each year, and offers lots of news, information, and reports about the field.
  20. Cancer Care: Cancer Care provides support for families with cancer, as well as caregivers.
  21. Association for Death Education & Counseling: ADEC works to improve death education, counseling, and caregiving.
  22. Children’s Hospice International: This organization offers assistance, research and education relating to children with life threatening conditions.
  23. Funeral Consumers Alliance: Find support for death and funerals through this organization.
  24. Compassion & Choices: This nonprofit organization offers resources for improving care and choices at the end of life.
  25. American Medical Association: The AMA offers resources and information for diseases and death.
  26. ALS Association: In this association, you’ll find resources for Amyotrophic Lateral Sclerosis, also known as Lou Gherig’s disease.
  27. American Heart Association: Find resources for preventing heart disease on this website.
  28. National Alliance for Caregiving: Find information and research related to caregiving through this organization.
  29. American Academy of Hospice and Palliative Medicine: The AAHPM is a group of physicians and other medical professionals that support the work of caregivers is hospices and beyond.
  30. American Liver Foundation: The American Liver Foundation works to prevent, treat, and conquer diseases of the liver and gallbladder.
  31. American Pain Society: If you care for those who suffer from chronic pain, you can find support through this group.
  32. American Lung Association: The American Lung Association is dedicated to preventing lung disease, specifically asthma.
  33. American Brain Tumor Association: The ABTA addresses brain tumors, treatment, and coping with them.
  34. Palliative Dementia Care Resources: The Polisher Research Institute shares resources for dementia caregivers on this site.
  35. Hospice and Palliative Care in Alzheimer’s Disease: Check out this resource to learn about caring for patients with Alzheimer’s.

Information Sources

Here you can find lots of information on caregiver support.

  1. CareSearch: Search for palliative care and evidence on this site.
  2. Caring Connections: Through Caring Connections, you can find resources for planning ahead.
  3. Nursing Degrees Guide: This website has a variety of informational ‘resource type’ articles about topics like ob nursing careers and more.
  4. Resources for Aging: This guide offers education and information for elder care, caregiving, and senior issues.
  5. Center for Social Work Leadership Evidence Database: Through this database, you’ll be able to find research and innovations in palliative and hospice care.
  6. Catholic Charities Caregivers Support Services: Through this resource, you can find help as a caregiver.
  7. Caregivers-USA: Visit this directory to find support services for caregivers throughout the nation.
  8. Home Instead: Through Home Instead, you can learn how end of life care can be managed at home.

Guides & Articles

Follow these guides and articles for lots of useful advice.

  1. Catering for Older Vegetarians and Vegans: Read this guide to learn helpful information for providing meals to people who are vegans and vegetarians.
  2. MedlinePlus: MedlinePlus offers resources for coping, dealing with specific conditions, and more.
  3. Tips on Eating Well as You Get Older: Help your patients eat better with this resource.
  4. Medication Management: With this resource, you can have an easier time staying on top of patient medications.
  5. Financial Steps for Caregivers: What You Need to Know about Money and Retirement: Ensure that your financial house is in order while you are caring for others.
  6. Eligibility for Public Benefits: Learn more about eligibility for public benefits through this useful resource.
  7. Fall Prevention: Visit this resource to find information and tools for preventing patient falls.
  8. Caregiving in Rural America: This resource will help you learn about the need for rural caregives.
  9. Dying Well: The Prospect for Growth at the End of Life: Ira Byock shares thoughts for improving the end of life in this essay.

Grief Support

Find help dealing with grief through these resources.

  1. Grief Healing: This website provides thoughts and resources for overcoming grief.
  2. GriefNet: Join this community to find support groups and other resources for grief.
  3. GROWW: This website offers online grief recovery.
  4. Center for Loss & Life Transition: This center and its bookstore and website offer support and resources for those who are grieving death.

Family Caregiving

If your patients receive supplemental care from their families, these resources may be helpful.

  1. Family Caregiver Support: State Facts at a Glance: In this report, you’ll learn about family caregivers in each of the 50 states.
  2. Caregivers Count Too: An Online Toolkit to Help Practitioners Assess the Needs of Family Caregivers: Help family caregivers by evaluating their needs with this resource.
  3. Children of Aging Parents: This resource offers helpful information for those who care for aging parents.
  4. Economic Value of Family Caregiving: Read this report to find out just how much family caregivers help.
  5. The State of the States in Family Caregiver Support: A 50-State Study: Read this study to learn more about family caregivers throughout the US.
  6. Ten Tips for Caregiving Families: Read this article to get tips for future planning.

Policy and Government

Learn how policy and government impacts your livelihood, and find out what you can do about it.

  1. Retirement Policy: Learn more about Social Security, pensions, long-term care and more as they relate to federal budgets through this resource.
  2. Local Services Plan Guidelines for Mental Hygiene Services: Find out how state agencies are working to improve resources for hospices and caregivers in this resource.
  3. US Living Will Registry: This resource offers management of advance health care directives.

Tools

Put these tools to work for better information and care.

  1. Personal Medical Problem List: Make use of this list to keep your patient’s most essential information handy whenever needed.
  2. Long Term Care Link: Through Long Term Care Link, you can arrange long term care.
  3. Care Planner: This site can help your patient determine the best living option for them.
  4. A Place for a Mom: Use this website to find elder care just about anywhere.
  5. Elder Care Locator: Use this service to find assistance from state and local agencies.

Community

Join these communities to get support and camaraderie from other hospice workers and caregivers.

  1. Empowering Caregivers: Join this site to find information, message boards, humor and more for caregivers.
  2. ElderCare Online: In this community, you’ll find resources including a forum, articles, and newsletters.

Blogs & Publications

Get the latest information and insightful thoughts from these blogs and magazines.

  1. The Healthy Caregiver: This magazine offers resources for elder care to professional and family caregivers.
  2. Seniormag: Caregiver’s Handbook: Use this publication to find information and resources for caregiver support.
  3. Stride Magazine: Check out Stride magazine, and you’ll find lots of helpful information for caregivers.
  4. Hospice and Caregiving Blog: This blog offers stories and articles about the end of life experience.
  5. Today’s Caregiver: This magazine and website is all about supporting caregivers.
  6. The New Old Age: On this blog, you’ll read first hand accounts from people who are caring for family members.

Advice & Support

Turn to these websites and resources for excellent advice and support.

  1. Transitions Elder Care Consulting: With Transitions, you’ll find a guide to elder caregiving, a support forum, assessment tools, tips, and more.
  2. Alexandra Kennedy: Alexandra’s website offers advice and resources for those who are grieving.
  3. The Eldercare Team: The Eldercare team offers information and support for those who are caring for elders.
  4. Counseling for Loss and Life Changes: This doctor’s website follows the stages of grief and more.
  5. Full Circle of Care: In this resources, caregivers of older adults can make informed decisions and find assistance.
  6. Age Wise Living: With Age Wise Living, you can find counseling and information for aging patients.
  7. Help4Caregivers: Through this website, you can find information, resources, and referrals.
  8. NetofCare: Through the Net of Care, you can learn how to be a better caregiver to yourself and your patients.
  9. Crisis, Grief, and Healing: Use Webhealing to find books for grief, discussions, and more.
  10. Elder Care Advisors: Find advice, training, and more through this website.
  11. ElderWeb: ElderWeb offers lots of information for end of life care and care of the elderly.
  12. The ElderCare Resource Center: This resource center provides information and support for Alzheimer’s disease to patients and caregivers.
  13. Growth House: This website offers a handbook, blogs, forums, and more for death, grief, and more.
  14. CareGiving: Learn how to be a more effective caregiver and find support from this website.

Funeral Resources

Here you’ll find useful information for funeral planning.

  1. Final Passages: Final Passages offers information and resources for directing a family-run funeral.
  2. Crossings: Crossings is a great resource for anyone who is interested in a home funeral or green burial.

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